Research builds my children’s community

1980 to present
Ottawa, Ontario
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Finding the genetic cause of her daughters’ illness was the key Samantha Knapp needed to tap into a community of parents going through the same thing.

Having a sick child, and not knowing the cause of her illness was a frightening and isolating experience for Samantha Knapp, who has six children, two of whom have a rare genetic disorder that causes severe seizures in newborns and infants. Nearly twenty years ago, when Knapp’s eldest daughter Asia started having seizures as a baby, very little was known about this condition. 

Read more of Research builds my children’s community. 

Find more stories of research in action on, the website of the Canada Foundation for Innovation.